2016: Same Old, Same Old

How is it almost February?

I spent January working my ass off and being sick, so I’ve lost all concept of time. I started a 4th and 5th job, so my schedule is ridiculous. Honestly, if I didn’t have a multi-device syncing calendar I’d be completely screwed. And it’s not like I’m working an excessive number of hours (40-50 a week, on average), but being all over the place at all different times of the day is making me scatterbrained. I’ve turned into a complete flake, and it’s really starting to get to me!

(In a spontaneous act of crazy, needing to feel like I had some sort of control, I got a pair of scissors and chopped off all my hair. Thank you to Saira for being my inspiration there! Heh.)

It’s also not helping that my anxiety is getting bad. And the irony is that the source of anxiety is that (1) I’m beyond paranoid that I’m going to have a panic attack at work, and (2) I lose my prescription benefits at the end of this month.

A big issue for me in early 2015 was that I stopped sleeping regularly due to nocturnal panic episodes, caused my dreams (typically the traditional teeth falling out dream). They went away last spring, but returned in the last few weeks. Recently it’s the same dream over and over: I’m at work (my retail job, which I’ve been at since October and quite like) and am constantly getting into trouble because I’m doing everything wrong. As the dream goes on coworkers start coming up to me and telling me how incompetent I am and that management is furious. Eventually in the dream I have a panic attack, am yelled at by a manager, and fired. And then I wake up in a panic attack (hyperventilating, crying, nose bleed, all that fun stuff). I’ve had this same dream, and same panic episode, the last 3 nights in a row. UGH.

As for the benefits, I don’t even know what to do. I can’t afford my auto-immune meds AND my anxiety meds. So I weighed the option of taking one vs the other. If I stop the anxiety meds I’ll probably relapse into my anxiety-ridden self, but if I stop my auto-immune meds I could potentially die, so… I voted for anxiety meds! But I went to my doctor this morning and asked about weening off the meds to which I received the most incredulous look of all time. “You have an incredibly severe anxiety disorder. You can not go off medication.” OKAY, OKAY.

So, I now need to figure out how to pay the $500/month for meds. I keep getting denied for private insurance, so I might try Trillium again. I’ve been denied twice, but maybe third time’s the charm. Everyone please cross all fingers and toes. Thx.

Hmm, what else? I was supposed to start the 3rd semester of my out-patient anxiety program yesterday, but being a sleep deprived flake, I missed the first session. So I need to make sure that I sort that out and don’t get myself kicked out of the program. And today I finally made appointments with my counsellor and occupational therapist. They’re both going to shout at me for taking more jobs…

The last time I saw either of them I had just taken on a second one, and neither were impressed. But I think I needed to do it, and I’m happy I did. I realized the only reason I wasn’t was because I had convinced myself I couldn’t. But it turns out I could! I’m not completely incompetent!

Well, not outside of my anxiety dreams, at least.

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Shrinking World

After months of fighting, begging, and waiting I have finally started an OHIP covered treatment program for all the anxiety/panic issues I’ve been dealing with. The next few months are going to be rough, but I’ll be working with a team from a few different outpatient clinics and health centres in the area. Last week I met with a psychiatrist and a social worker (separate services) for assessment, and both agreed to continue working with me. OHIP only covers a handful of sessions with each, but I’m hopeful that even the short time will be of help. They’ve both also mentioned options for services following their own, ones that they can get me into – therapy, panic support counselling, anxiety wellness group. I finally feel like I’ve been able to gain access to this seemingly impenetrable system after 8 long years.

The timing of this is equally perfect and horrible. You see, for as long as I’ve been dealing with these issues, I’ve never had my world shrink down to it’s current extreme. My anxiety may have been bad in the past, but school and work and life always forced me to keep my bubble large and rather elasticized. There was always the occasional bad day where I just couldn’t, but most of the time I’d take a deep breath and step out into the world. If need be I’d go out to my car or into a stairwell to have a panic attack or cry or shout in frustration. But, I was still out there, moving, interacting.

But I don’t have that anymore. I don’t have school or work or life. In the spring my bubble was the whole of central London. In the summer it was the spaces (and walking route between) home and work. Now it’s shrunk to the second floor of the house. The world outside the bubble feels dangerous, filled with unpredictability and discomfort. Everything has the potential to set me off, to make me lose myself in a space that is not safe, and that’s terrifying.

I wasn’t familiar with the idea of the shrinking world until recently (at least not consciously), but it’s a shift I began to notice over the past year. Those who know me know I love to travel, and would go just about anywhere in a heartbeat. But in spring 2014 I had a flight booked and entire trip planned to Oslo, but on the day of departure I couldn’t get on the plane. I was terrified and I didn’t know why, so I spent days/weeks beating myself up for such an irrational decision to not go. I mean, really? I’ve been to 15 countries, half of those travelling solo. I’ve had so much shit thrown at me while travelling (figuratively and literally, as some of you may remember!) that I know I’m fully capable of dealing with many worst case scenarios. And yet…

I’d hoped it was a one off, but then in November when I was meant to go to New York I once again panicked. I sent a text to a close friend stating “I can’t go to New York. I just don’t think I should go.” and when she asked “How come?”, I replied “I’m terrified.” Truthfully, the only reason I did end up going was because of an argument at home and the resulting fear of staying and dealing with the ramifications of that outweighed my fear of going on the trip.

That trip was two months ago now, and since returned home my bubble has snapped back in around me. I don’t leave the house for days on end (a week in a few instances), and when I do, I don’t venture far. And because of this, every time I go out, it’s more difficult than the last time.

After my appointment with the psychiatrist last week I was so utterly frustrated with myself and how bad this has gotten that I got in the car and drove to Toronto, where I got out for about 15 minutes before driving back home. I then had a massive panic attack, of course, but two steps forward, one step back is better than the reverse. The leap without looking approach has always been my go-to in the past, and has served me well. I mean just over a year ago I went for a one week holiday to the UK, but decided to skip my flight home and stay for 10 months instead. Unfortunately I’m not in a position to leap right now. I have no money, no job prospects, and no where to go. I’ve been incredibly fortunate in the past to have people who took me in while I got back on my feet after a massive leap, but I don’t think such an option exists this time round. Plus, shouldn’t there be a point where I can do it all on my own?

I must also admit that one of the worst things about the bubble is that it doesn’t limit me to the space itself (though that does indeed suck), but it limits my interactions with people outside of the bubble. I can’t talk to people anymore. Partially because I don’t know what to say, and partially because I’m embarrassed about being a narcissistic, scatter brained mess (and who on earth wants to have anything to do with that?). It’s easier just to not talk to people. Their lives are going so well, and the last thing I want to do it be some kind of damper in that.

Anyway. The social worker has given me some mundane tasks to accomplish (leave the house twice a day, even if only to do a quick walk around the block), cook a proper meal (apparently eating cereal for dinner every night isn’t great?), and get in contact with some people she suggested. I’ve yet to technically accomplish any of these things since our appointment on Wednesday, and I feel beyond pathetic about it. But tomorrow’s a new day and all that.

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Ouch

I’ve been at my new job for a week now. The actual work is pretty mundane, but the people are nice and the backdrop is gorgeous, so it’s been pretty good. Plus, getting out into the world on a regular basis has helped ease that rut I was in (who knew? /sarcasm). Unfortunately being able to leave the update there just isn’t my brand of luck.

I mentioned a couple of months ago that I was getting sick, but was so happy when I somehow managed to have a positive turn around in August. That laceration in my gut, which has been the bane of my existence since around February, was finally starting to heal on it’s own. Thank Thor! Sadly, after a month problem-free, it tore open again this past weekend and is bleeding more than ever before.

I’m not sure if the tearing is work-related, coincidental, or what. Regardless, it hurts and is making me feel terrible. And on top of that I’ve now gotten myself completely stressed out worrying about it. I ended up having a panic attack at work today, which aside from being beyond embarrassing, makes me look completely incompetent. It’s not easy to explain to someone who’s not familiar with anxiety that an attack isn’t necessarily related to what’s happening in the moment. The job is not stressful or anxiety-inducing, which I tried to say today, but ever since that incident at the Natural History Museum I’m paranoid. And that isn’t helping the stress either.

I have an appointment with the gastrointestinal surgeon in 2 weeks, so fingers crossed for some good news there. I’m not thrilled at the prospect of surgery, but it definitely beats the alternative.

For the moment I just need to focus on not freaking out about going to work tomorrow because I’m mortified about what happened today.

Beer me strength…

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Abandoned tram system in the woods at work

No Help, No Hope

I’m glad there’s been a lot of talk this past week about the state of mental health services. The reason it was brought to the front page is beyond horrific, but maybe some change will come out of this terrible tragedy. And it’s not just the United States who are guilty of such deplorable services- It’s everywhere. After the week/month/year I’ve had I think I’m qualified to make this assertion.

Continue reading “No Help, No Hope”